While health professionals and health researchers are the experts on the illness, patients are the experts of living with the illness. Patients bring direct experience and fresh perspectives to research. When patients are involved in health research, they are empowered to have a direct impact on arrhythmia care.
CANet believes that patients should play a key role in developing research agendas and conducting research and the Network involves patients in all aspects of decision-making, operations, and participation in research programs.
The CANet Patient Advisory Council (PAC) consists of 10 patients, caregivers or family members affected by arrhythmia from across Canada and who have significant experience in the healthcare system. Members of our PAC share their knowledge of living with arrhythmia to participate in the majority of activities and initiatives of CANet.
Each CANet-funded project and activity has a PAC member or other arrhythmia patient as a fully integrated member of the research team.
Patient partners share valuable insight and first-hand knowledge of how arrhythmia care impacts patients and their families. Our patient partners are involved across the Network as patient co-leads on research projects, and as volunteers on all committees including the Patient Advisory Committee and Board of Directors. CANet patient partners are involved and share their expertise in the following areas: